By Kim O'Leary
Kildare diabetes advocates have launched a new petition which has amassed over 10,000 signatures in the past week with the aim of persuading the HSE to reimburse adults and children with Type 1 diabetes.
Diabetes Ireland has said that it received clarification on Monday last that the HSE restrictions on reimbursement will mean that only a few hundred people out of a reported 16,000 people diagnosed with the auto-immune disease which has no known cure will have access to the scheme.
Last week in the Dail Kildare North TD Frank O’Rourke discussed the inclusion of the FreeStyle Libre device which is said to change the lives of many people living with Type 1 diabetes, although according to Kildare diabetes advocates and Thriveabetes very few people will actually receive access to the scheme and the Libre device which calculates blood sugar levels painlessly in the span of 10 to 30 seconds.
The Libre is a device in 2 parts, the first part is worn on the arm (a sensor ) for up to 14 days at a time and the other part is a monitor that when scanned over the sensor, giving a reading of what a person’s glucose reading is at that moment on a flash glucose meter, and when worn it almost eliminates finger pricking to check blood.
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The FreeStyle Libre device is a new development and is said to be painless and takes 10-30 seconds to read blood sugar levels
Meanwhile, Kildare-based diabetes advocate Davina Lyon, co-founder of Diabetes T One & Diabetes Life, who was herself diagnosed as an adult with Type 1 diabetes ten years ago before her 50th birthday, said that she decided to set up a petition calling on the Health Minister Simon Harris to amend the scheme to ensure equality for everyone with the condition.
Speaking to KildareNow about the petition, Davina Lyon explained: “The petition is well over 10,000 signatures now and gathering speed in a big way, I set it up only last Thursday (January25) because I was so angry and upset with the HSE’s response to the reality for children and adults with Type 1 diabetes.”
She said: “It is absolutely disgraceful that out of 16,000 people in Ireland living with Type 1 diabetes only a couple hundred will be entitled to this scheme. The children and teenagers not entitled to it are on insulin pumps and injections which is not a cure and there’s difficulties with the company that supplies the pumps. Meanwhile, there are actually more adults in the country with type 1 diabetes and they have had heart problems, become blind, and even lost limbs from diabetes, and it is my belief that we need the model of care even more than the kids and while insulin may keep us alive it’s a treatment that must be administered in order to stay alive.”
Diabetes advocates across the country criticised Health Minister Simon Harris’s announcement on Friday 19 January of the LTI scheme and they claim that the scheme is continuing a discriminatory pattern towards adults with type 1 diabetes.
Then in December 2017 a set of Guidelines for Adult Type 1 Diabetes went into an External Consultations Process, and it is unknown when the guidelines will be published with the process potentially taking 2 to 4 years.
However, Davina Lyon and other advocate are hopeful that the new petition which aims to reach 15,000 signatures will push the HSE to make the scheme available to all Type 1 diabetes patients regardless of age or other factors.
She said: “We will now move towards presenting it to Minister Harris for his consideration and to make him aware of our feelings that there is a fairer way to roll out the Freestyle Libre reimbursement scheme and that’s without discrimination and with inclusion for all Type 1s if they need it.”
For more information on the petition visit:
https://www.change.org/p/hse-health-service-executive-equality-for-all-people-with-type-1-diabetes?recruiter=63600589&utm_source=share_petition&utm_medium=copylink&utm_campaign=share_petition&utm_term=facebook_link
For more information on Type 1 Diabetes visit:
https://adiabeteslife.com/hse-minister-health-simon-harris-discriminate-adults-type-1-diabetes/
Thriveabetes
http://www.hse.ie/eng/health/hl/living/diabetes/
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